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Hello and Welcome, my name is Esta Within you will find information on, and about the condition known as, Fibromyalgia. This site is for those who have Fibromyalgia, as a means of information learning, and sharing, do join the forum and share with us. :) As well as information, for those who don't have FM, as a means to learn more about it. You will find this site a bit different from most sites you might find out on the Web, for the simple reason, save for bits quoted from researchers, every single piece of it, was written by a person with Fibromyalgia. So what you are about to read, is the facts, figures and up to date information, but also you will be able to read about life with FM, our thoughts on treatments, medical care and more ... from our perspective. Contained within, are tips and self help, for those with the disorder. As well as information for relatives, friends, and care givers. Throughout the site, you will see that I generally short hand the disorder as FM, not FMS ( unless it is a direct quote from research ) .. there is a reason for that, it has been deliberately dropped off, not only by myself, but by many others, including many doctors and researchers, as well. As the S stands for syndrome, which FM, by current medical classification is, but calling it one, is often one of the biggest problems in the public mind with it, due to mind set it creates, when many people hear the word. Please see Syndrome VS Disease, for full details on how in error this concept is. There is almost a mythology if you will, that surrounds Fibromyalgia. If you have read many sites on it at all, you have seen over and over, that it is often called, "mysterious", "perplexing" , or "baffling" or "poorly understood"... I think you can see the trend here. In short, most consider it a great big question mark, that defies explanation, and therefore ... to be blunt, they don't bother looking for an explanation. The same goes for calling it, incurable. As long as it's thought of this way, so it will remain, as there is no incentive to find a cure for it. So, calling it any of these things, is not only not helpful, it's counter productive to finding answers. The fact is, it's not such a huge question mark. There is plenty of research and therefore, explanation, for it. Considering it a incurable mystery, is yet one more way of, quite bluntly, avoiding doing anything about it. Thankfully, not everyone feels that FM is some great untold mystery, that cannot be solved, and have made the reverse assumption, and researched accordingly. On this site, I have made a point to share some of that research, with you, the reader. You will find quite a bit of rebuttal, for what you might typically see on most Fibromyalgia sites, and that is deliberate. As most such sites, even if well intended, tend to propagate a great deal of misleading information, that is often, very out dated, or whose base line research, has long since been refuted. I have made considerable effort, not to repeat that error here, with many outlinks, for you to go read the research and findings, for yourself. Please see the links page for all the references, in one place. Anything that is not defined by research, is my personal prospective, or thoughts on the matter. A prospective that is based on over 10 years ( from date or diagnosis ) of real life experience, and extensive personal study. It is almost impossible to explain Fibromyalgia in brief, as the one thing that is often said of it, that is true, is that it is complex, therefore, I won't even make the attempt to outline it, but I invite you to read on, and make the discoveries, yourself, and I hope you find my missives, enlightening. This site will be updated, as new information becomes available. The information in this website is not intended to be medical advice, or as a means for diagnosis, you use any/all data, or suggestions, at your own risk
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