note that most links
presented, are off site links, save where noted.
is a new disease.
similar to Fibromyalgia were described in the 1700's. It was called
in 1904 and renamed Fibromyalgia in the 1980's
is no cure for Fibromyalgia
Fact: There is
no cure ... yet ! Assuming there is none, makes it a sure bet that no
will bother trying to find one.
Fiction: FM is
not life threatening
Fact: FM is not
directly life threatening in and of itself, but the cumulative damage
effects life expectancy.
cannot be diagnosed through blood tests, X-rays or muscle biopsies
Fact: Only partly
true. Not with the typical lab work that is currently used, no, but in
actuality, yes it can. This is done, one, via special testing, but such
is generally done in a research setting that is far beyond your typical
lab setting. Furthermore, there is a blood assay, APA
intended for general lab use, which detects an abnormal immune system
which has been available for quite some time (1999 is the date on the
press release ), however, its availability is not common knowledge and
most certainly it is not in common use.
There has been extensive testing
done on the assay, and it has shown itself to be a reliable indicator
FM. The reasons for the medical professions failure to apply it or make
use it, are unknown. So saying it cannot be diagnosed with lab work, is
is caused by deconditoning, and they just need to get some exercise.
Fact: Most FM
suffers were very physically fit, active people, when the disease
and were not in any way deconditioned. Research indicates that anyone
is "cured" of FM by an exercise regime alone, were often misdiagnosed
and were found to be suffering from clinical depression and other
which mimic many of the signs of FM, which has lead to this common
"The limbic system
plays an important role in regulating the body's stress response, and
normal circumstances, one would expect to cause the following (from
an exercise bicycle stress test):
increase in temperature
increase in cortisol
increase in growth
increase in catecholamines
(norepinephrine and epinephrine)
increase in cerebral
None of the above
predictions occurred in the CFS/FMS patient population! In fact, both
and cerebral blood flow decreased with exercise -- the opposite of what
one would expect. ... "
was noted between improvement in aerobic fitness, as measured by VT,
the improvement of pain, function, or scores ... aerobic exercise is
to patients with FM overall, but the possible cardiorespiratory fitness
gain is not related to any notable improvement of FM symptoms."
fitness effects in Fibromyalgia. J Rheumatol.
with Fibromyalgia exaggerate their pain.
Fact: We often hide our pain for starters.
And the pain
is twice the severity and life impact, of rheumatoid arthritis. Journal
a diagnosis makes the condition worse, as you are now labeled as "sick"
and therefore, "act" sick.
Fact: We were
sick long before we got any diagnosis. A diagnosis is a relief to most
people, for the simple reason, we now know what we are dealing with and
generally improve as a result, rather than decline.
Fiction: FM is
an Adjustment disorder
Fact : An Adjustment
Disorder is an abnormal and excessive reaction to an identifiable life
stressor, beginning within three months of the onset of an identifiable
stressor and lasts no longer that six months after the stressors have
There is no identifiable stressor in FM and its effect is a duration of
Fiction : Fibromyalgia
is a diagnosis only reached by exclusion, meaning if you rule out
else, it must be FM
Fact: In 1990,
The American College of Rheumatology and many others, scientifically
the diagnostic criteria for FM. The need to rule out other conditions,
is a fact, as FM signs, mimic other aliments, that might otherwise be
if not investigated. However, this is not needed for a diagnosis of FM.
with FM are just looking for sympathy.
Fact: In order
to garner sympathy or pity, one requires A: an audience and B: persons
who are disposed to give sympathy. Those with FM, feel just as much
and difficulty, even when they are alone. ( James and Hawser, Pain in
hidden camera studies, and others ) Persons with chronic pain tend to
hide their pain rather than display it. Most people are not
to invisible illness. "Our society encourages denial of all things
especially those we fear or cannot readily understand." Katrina
Fiction: You look
fine, you must be fine.
Fact: Over (133
million) people in American, has a chronic condition. 93% of which,
disabilities not visible to the naked eye. ( You look fine, on site
is not a disabling condition.
Fact: The rate
of disability for Fibromyalgia patients may be as high as 44 percent or
more, according to the Arthritis
with Fibromyalgia sought their diagnosis.
Fact: 75% of
people diagnosed with Fibromyalgia, had never heard of the disorder,
to the date of their diagnosis.
is a psychiatric problem.
Fact: The percentage
of FM patients who suffer with depression
on site link, is no higher than for any other chronic
is a by product of the disorder, not the cause. "The majority of
didn't have depression in the years before they became ill." FM
have revealed a number of biological abnormalities, including:
flow to specific areas of the brain, particularly the thalamus region,
which may help explain the pain sensitivity and cognitive functioning
experienced by Fibromyalgia patients.
High levels of
“substance P,” a central nervous system neurotransmitter involved in
Low levels of
nerve growth factor.
Low levels of
somatomedin C, a hormone that promotes bone and muscle growth.
Low levels of
several neurochemicals: serotonin, norepinephrine, dopamine and
Low levels of
phosphocreatine and adenosine, muscle-cell chemicals. " Karen
None of these
physical changes happen in psychiatric conditions, but consistently
in persons with FM.
is a fatal condition.
Fact: There have
been no reported deaths directly related to FM itself. It is to be
however, that those with FM, have a higher than normal suicide rate,
stands at over nine times the national average, at 26.1 %, The normal
for the general population, is 2.9% Research
women get Fibromyalgia.
research suggests that 1 in 8 Fibromyalgia patients is male. That
is considered low and is under challenge. It is postulated that the
are closer to one out of three, are male. Men's
only affects older adults.
Fact: FM does
effect, teens, young
adults, and children.
Fiction: The best
medicines for FM are anti inflammatory drugs.
Fact: FM is not
an inflammatory condition, so such medications are of little value. If
any pain reduction is noted, it is likely arthritis or another
conditions pain, that is being reduced. "Non-steroidal
drugs (NSAIDS – pronounced en-seds) and corticosteroids are two types
medications often used to treat many forms of arthritis. However,
has been shown to be useful in treating Fibromyalgia." The
is very rare.
is a very common disorder, affecting more than 8-10 million people in
United States. Currently over 30% of the persons seen in your average
office, are being seen for FM.
is a form of arthritis.
Fact: While many
people with FM have some form of arthritis, it is not FM. Fibromyalgia
is a neurological disorder that is often seen in tandem with arthritis,
lupus and other joint, muscle problems. According to the National
Institutes of Health, Fibromyalgia is not truly a form of
but is considered an arthritis related condition and a rheumatic
with regard to it's classification.
Fiction: FM does
not progress or worsen.
Fact: "No one
goes to bed one night healthy, and just wakes up with FM", so of course
there is a progression. Those with FM are often diagnosed in middle
but research shows that the signs and symptoms were there but
long before the final diagnoses is finally reached. Ergo, it has
in severity until it becomes apparent what is wrong.
exercise Fibromyalgia pain away.
Fact: "Any program
involving sustained aerobic activity that induces cardiovascular debt
strenuous muscular exertion such as weightlifting, can seriously damage
sufferers of Fibromyalgia and Chronic Fatigue Syndrome... Damage to the
Autonomic Nervous System in patients with Fibromyalgia and CFS mean
energy production via the Sympathetic Nervous System in response to
is impaired. More importantly, removal of toxins and lactic acid
by the muscles in response to exercise via the lymphatic and venous
is seriously compromised, and as a result causes toxic overload and
symptomatic decline after exercise. This results in the
malaise" that Fibromyalgia and CFS sufferers who have attempted an
regime WILL have experienced." Mark
Fiction: You just
have to learn to live with the pain, There's nothing that can be done.
Fact: This is
a statement from a doctor who does not know enough, or care enough to
you. Find another physician.
If you have slept for 8 hours, you have gotten enough sleep.
Physician's Guide to Fibromyalgia Syndrome" notes that abnormal amounts
of alpha activity have been reported on electroencephalograms of FMS
patients during deep sleep. Since the alpha stage is the lightest sleep
recorded, those with increased alpha sleep do not awaken rested and
refreshed, even if they have been "asleep" for eight hours.
a day when you are feeling well, you should do as much as possible,
since you may not be productive the next day.
Fact: Absolutely not, as this is just
asking to crash and burn
( on site link )
never fully be productive in your life again and won't be able to
completely enjoy your life.
While you may have to change how you do things, you can still be
productive, just in another way and enjoyment of life comes from
pain killing medications to someone with chronic pain, is courting
have shown that the fears of patients becoming addicted are
and do not justify failure to relieve pain. Patients who are in pain
are being medically managed, are receiving treatment for a specific
and do not become addicted" Bruce
R. Canaday "
supports fear of addiction
as a reason for withholding narcotics when they are indicated for pain
relief. All studies show that regardless of doses or length of time on
narcotics, the incidence of addiction is less than 1%." Devin
pain is just a normal part of the aging process.
Fact: "The presence
of pain in older adults is not normal, and should be treated with the
aggressive approach that is used for younger people." AARP
Fiction: A person
who does not complain of pain, must not have pain.
do not report pain for many reasons. They may not want to be a burden
their families or care givers. Very often however, according to reports
and surveys, pain sufferers feel that they will not be believed or
have been met with scorn or derision in the past so, they stop
and Myofascial pain on site link,
are one in the
Fact: While most
with FM do have CMP, and they are commonly seen together, they are not
the same condition, and have to be treated separately. CMP pain differs
from FM in that it is localized, rather than defuse, fatigue is not a
and the trigger points can be resolved with proper treatment.
points and Tender points are the same thing
points are CMP( on site link )
points, VS Tender
points, the points used for diagnostics in FM. They are not the same
Fiction: Any pains
or symptoms you feel when you have FM, is your FM.
FM does not confer any immunity from getting other conditions.
Dismissing any new pains
or signs, could cause both the patient and the doctor to ignore major
warning signs. Any new pain or condition, should be investigated
Fiction: Patients who complain of
pain, despite treatment, are just seeking drugs.
than half of the patients
with Fibromyalgia achieve adequate pain relief with medications and
includes when given narcotics. "Opioid pain killers work by binding to
opioid receptors in the brain and spinal cord ... Patients with
were found to have reduced binding ability of a type of receptor in the
brain, that is the target of opioid pain killer drugs such as morphine.
most persons with FM, who,
in the early stages, have often tried many or even all, of the current
day medications typically given for FM, often stop taking any
them. They do so, due to the medications failure to improve their
or pain and as noted, this often includes
and pain management on site link.
was recently (2012) given a stronger narcotic for pain, at my request.
To my doctors shock, in less than a mt, I told her to go back to the
older, weaker variety. As the so called stronger narcotic, being of a
slightly different chemical nature, did not work as well as the former
Fiction: People with FM are just
blind studies have found
that rheumatologists could dependendably tell the difference between
who truly had Fibromyalgia, and those who were given an incentive, and
the detailed directions, on how to fake the symptoms."
Fiction: The drug Lyrica, is a new
and was developed for FM.
(pregabalin), is not new,
it was developed and approved in December 2004, for the treatment of neuropathic
pain in Diabetes and Shingles. It is also used to control
the first drug that has ever been
for use in Fibromyalgia directly, by the FDA, but it was not developed
for FM. It has proved, thus far, not to be very effective for FM in
life trials, but the jury is still out on it.
others that have been recently approved are:
can find information about both on the Medications on
site link Page.
medications, currently given for
FM, were developed for other purposes, and their use in FM is classed
"off label" use. There are no medications to date, that have been
for Fibromyalgia specifically.
Fiction:Since there is no medication
made just for for Fibromyalgia, there is no use going to a doctor for
While no doctor can cure FM ... yet, there are treatments to help you
mitigate the symptoms and any of the symptoms you
can make less, is well worth