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Male or Female? Female
were you diagnosed ? March 2008
What are your current symptoms? Severe upper back pain, muscle spasms, IBS, Painful urination ( I have interstitial Cystitis), Knots in muscles, fatigue, insomnia, brain fog, numbness and tingling in arms/fingers, Jumpy leg syndrome right as I am dozing off to sleep my whole body twitches and jumps it's very annoying. Pain in joints thru out my body one day it's the right hip, the next my left knee. With my knee pain it literally feels as though someone is prying my knee cap off with a oyster knife. I now walk with a limp in my right leg, I'm very clumsy and often trip, stub my toe, etc. My leg will often give out on me. I cannot drive, sit, stand for longer than 15-20 minutes at a time. I can no longer grocery shop by myself because pushing the buggy kills my arms.
clinically diagnosed conditions ? Stage IV endometriosis, Interstitial
Cystitis, IBS, Rectalperitoneal fibrosis, pelvic floor myalgia,
headaches, hashimotos thyroiditis, chronic myofascial pain, failed back
syndrome, insomnia,ptsd, generalized anxiety disorder, panic attacks,
ulcer, GERD, inflammatory arthritis (yea my rheumatologist is a real
all arthritis is inflammatory but he can't tell me what kind of
Have you filed for disability? YES
What results from the filing ? Waiting on a court date. I originally filed on October 31, 2007. I filed my appeal on March 7, 2008 and currently awaiting a court date. I have hired a lawyer to assist with the appeal.
prior injuries or trauma? Numerous laporascopies to remove
What caused the fibro was on Oct 2, 2007 my obgyn gave me an injection
called lupron depot to treat the endometriosis. He told me it would
us be able to conceive easier and quicker. His exact words were "I
in 6 weeks you will be pain free." After suffering daily from abdominal
pain, stabbing sharp pains that shot up my rectum and vaginal canals,
so bad during menses that I would lay on the bathroom floor curled in a
ball crying and vomiting. Pain free sounded really good. He
me my only side effects would be those suffered with menopause, Hot
moodiness, nightsweats and vaginal dryness. He forgot to mention the
joint pain I would wake up to two days afterwards. Joint pain so severe
I could not bear weight on my legs and my husband had to carry me to
bathroom and to the dr's office.
for the loss of my body, the grief I feel some days is overwelming. My
husband is so good to me. He works long hours then comes home and helps
cook and clean and bath kids, whatever I was unable to accomplish while
he was at work. He never complains. I know he must feel resentment
me even though he says he does'nt. He didnt sign up for this when we
and had kids. I know I'm resentful that this happened to me. I didn't
up for this. I hate the new me. I want my old life and body back. I
these damn illnesses and symptoms. And the meds and all their side
just make it ten times worse!
Been admitted to a hospital for pain? I've been to the ER several times for pain, but never admitted or kept overnight for it.
remedies or medications have you tried?
immediately called my dr and stopped taking it. Percocet 10 mg helped
My dr switched me from percocet to the longer acting oxycontin. Then
oxycontin to my now oxycodone 15mg 4 times a day. It makes the pain a
level. when the pain is really severe the oxycodone does not do a thing
for it. I take zanaflex as well and honestly it doesnt seem to work
great for the muscle spasms. I think my body is immune to it. In the
(3/08) it worked great. I've since been on it over a year now and I
my body is just tolerant to it. He just increased it from 4 mg every 8
to 6mg every 8 hrs and honestly I don't notice much help from it. I
to bring up switching it for a month or so to maybe skelaxin or somas
see if those will work better at relaxing my muscle spasms.
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