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"First Name: SueBee
Male or Female? Female
When were you diagnosed ? April 2009
How long did it take to get a diagnosis ? 1 year
Your age at the onset of symptoms, apox? Not sure! 15 maybe?
What were your first symptoms? Pain in neck, shoulders and back.
What are your current symptoms? pain everywhere. head, neck, back, shoulders, kidneys, legs, feet.
Other clinically diagnosed conditions ? Excessive sleepiness
Are you still working? Yes
What line of work? Film and video production, writing and editing, and I also work as a bookkeeper part time when times are lean.
Are you disabled from Fibromyalgia? NO, at least not when I have good meds.
Have you filed for disability? No
What results from the filing ? N/A
Any prior injuries or trauma? Knee injuries, back injury
Major illnesses ? none
Does exercise help? and if so, what kind ? Miranda Esmonde-White's Classical Stretch on PBS, 5 days a week.
Have you ever have a long lasting virus? no
How has FM affected your life? It has made me slow and tired, but meds and exercise have helped me tremendously.
What makes symptoms worse? Stress, lack of food and water due to overwork, cold and wet air, sitting for long periods of time.
What makes you feel better? Light exercise and stretching, medication, to continue working.
Been admitted to a hospital for pain? No, but have been seen by urgent care clinicians
What remedies or medications have you tried? Triphasics, MAOIs, SSRIs, opiates, Provigil, multiple sleeping pills. I have a massage once a week (when possible), and acupuncture twice a month.
What results did the remedies have? The triphasics, MAOIs and SSRIs made me sick and crazy. At the moment, I take vicodin for pain, Provigil to combat the sleeping disorder associated with fibromyalgia, and temazepam for sleep to keep me from waking up in horrible pain. These remedies work GREAT. The others SUCKED and I have no idea why the mental disorder meds are even approved for fibromyalgia. I wanted to shoot myself on that crap, or shoot other people, and it all had a terrible effect on me. The doctors were initially worried about me becoming dependent on opiates, but I pointed out to them that as a chronic pain sufferer, I'm going to be dependent on drugs anyway, and as such, I may as well use something that WORKS. Massage and acupuncture round out my treatment.
COMMENTS: Are you unlucky enough to have been blessed with a doctor who claims to not believe in fibromyalgia? If so, remind your physician that at one point:
1) We didn't believe the earth was round
2) We didn't believe that black people should be able to vote
3) We believed that women's wombs wandered their bodies, thus explaining supposedly irrational frustration with patriarchial forces (lol).